Research Volunteer Opportunities in Pediatric Clinical Research
Transitions in Care
Description: Youth and their parents/guardian will participate in one 60-90 minute focus groups (on the same day) at Joslin. Youth groups will be separate from parent groups. Participants will be asked about their diabetes care and management, as well as how they feel about the eventual transition to adult diabetes care.
Recruitment: Individuals 12-18, who have had type 1 diabetes for at least 1 year and their parent/guardian.
Contact: If you are interested in learning more about the study, please contact Anna Christian at (617) 309-4523 or firstname.lastname@example.org
TrialNet Natural History Study for the Prevention of Type 1 Diabetes
Description: This study aims to identify youth and adults at risk for type 1 diabetes by testing for diabetes-related antibodies in relatives of people with type 1 diabetes. It involves a single blood test. People who test positive will be eligible for further testing and may be eligible to participate in prevention trials.
Recruitment: Parents, children, & siblings, ages 1-45, and cousins, grandchildren, nieces, & nephews, ages 1-20, of people with type 1 diabetes.
Contact: If you are interested in learning more about the study, please contact Sarah Szubowicz at (617) 309-4493 or email@example.com
The Tolerance Study
Description: This study is trying to help us better understand what causes type 1 diabetes to help find new ways to prevent or reverse the disease. The study is being done with researchers at Harvard Medical School and is funded by the Juvenile Diabetes Research Foundation.
The study visit includes the completion of questionnaires and a blood draw.
Recruiting: Individuals, ages 18 years and older, both with and without type 1 diabetes
Contact: For more information, contact Roxanne Phillips at 617-309-2481 or firstname.lastname@example.org
CGM improve study
Description: The purpose of this study is to find out how to make it easier for children and teens with type 1 diabetes to use continuous glucose monitors (CGM) over a long period of time.
The study involves 12 visits over a 24-month period with additional phone contacts between visits. The extra three visits occur during the first six months of the study: the rest of the visits will occur at routine clinic visits.
Families randomized to the intervention group will receive a family based behavioral intervention providing support and education regarding use of the CGM. Families in the usual care group will receive this information at the end of the study.
Youth in both groups will wear a CGM device throughout the study. Families will be asked to complete surveys at various intervals over the course of the study and labwork will be collected for the youth in the study.
Recruiting: Children and teens, ages 8-17 years, who have had type 1 diabetes for at least 1 year and who are receiving care at Joslin and their parents or legal guardians
Contact: If you are intereted in learning more about the study, please contact Katy Gaffney at 617-309-4475 or Kaitlin.Gaffney@joslin.harvard.edu