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Research Volunteer Opportunities in Pediatric Clinical Research

TrialNet Natural History Study for the Prevention of Type 1 Diabetes

Description:  This study aims to identify youth and adults at risk for type 1 diabetes by testing for diabetes-related antibodies in relatives of people with type 1 diabetes.  It involves a single blood test.  People who test positive will be eligible for further testing and may be eligible to participate in prevention trials.

Recruitment: Parents, children, & siblings, ages 1-45, and cousins, grandchildren, nieces, & nephews, ages 1-20, of people with type 1 diabetes.

Contact: If you are interested in learning more about the study, please contact Sarah Szubowicz at (617) 309-4493 or sarah.szubowicz@joslin.harvard.edu

(CHS #03-33) 

 

T1D Exchange

 Description: The Type 1 Diabetes (T1D) Exchange is a nationwide registry collecting information about children and adults with type 1 diabetes. The purpose of the registry is to gather information about people with type 1 diabetes to better understand the natural course of type 1 diabetes and the effectiveness of current treatments. Participation in the registry involves completion of a questionnaire about medical and family history including diabetes diagnosis and treatment and laboratory test results. Annual updates of information are also part of the registry.

Recruiting: At the Joslin, children <7 years of age being followed in the Pediatric, Adolescent, and Young Adult Section may be eligible to participate in this registry.

Contact: Alina Cheema at (617) 309-4477 or Alina.cheema@joslin.harvard.edu
 

 

SGLT2 Blocker Empagliflozin Study

Description: This study aims to find the best dose for children of a new oral medication already approved for use in adults with type 2 diabetes. The medication, called empagliflozin or Jardiance®, lowers blood glucose levels by increasing the amount of glucose "spilled" into the urine. Each participant will receive only a single dose of the medication. After an evaluation for eligibility that requires a single visit before breakfast, enrolled patients will stay at Joslin during the day and at the hotel across the street for 3 days and 2 nights so that blood and urine samples can be collected.  There is a final study visit one week following this 3 day study period. The study will provide all supplies for the study, parking for visits, and hotel charges. There is reimbursement for time and travel.

Recruiting: Children and teens, ages 10 to 17, with type 2
diabetes to participate in a study of an investigational oral medication to control blood glucose levels. An investigational medication is one that has not been approved for use in this population.

Contact: Maureen Malloy- 617-309-1919 or maureen.malloy@joslin.harvard.edu or Kerry Milaszewski- 617-309-4154 or kerry.milaszewski@joslin.harvard.edu

 

Patient and Parent Perceptions of Hypertension and Hyperlipidemia Management and Diabetes Complications

Description: This study will explore parent and youth attitudes toward cardiovascular risk factors such as high cholesterol or blood pressure and diabetes complications. Participation involves one interview or focus group for approximately 60-90 minutes. Interviews can be on the same day as routine diabetes visits and will add an extra 60 minutes to the clinic day.
The study will provide a parking voucher on the day of the interview or focus group. Participating teens and parents will also receive compensation for their time and effort.
 
Recruiting: Families of teens ages 13-19 who have had type 1 diabetes for 12 months or more.

Contact: Amanda Whitehouse at 617-309-4523 or amanda.whitehouse@joslin.harvard.edu
 

 

INSPIRE Study: Psychosocial Aspects of Artificial Pancreas Research

Description: This study will explore attitudes toward diabetes technology and automated insulin delivery. Participation involves a one-on-one interview or focus group discussing attitudes toward diabetes technologies. The study visit can take place on the same day as your routine diabetes visit and will take about 30-60 minutes.
The study will provide a parking voucher on the day of the study visit. Participants will also receive compensation for their time and effort.

Recruiting: Individuals who have had type 1 diabetes for 1 year or longer. Individuals who have family members or loved ones who have had type 1 diabetes for 1 year or longer.

Contact: Amanda Whitehouse at 617-309-4523 or amanda.whitehouse@joslin.harvard.edu
 

Improving Family Management and Glycemic Control in Youth <8 Years Old with Type 1 Diabetes

Description: This study will explore parental attitudes toward diabetes management in young children.  It involves participation in a one-on-one interview or focus group. The study visit can take place on the same day as your routine diabetes visit and will take about 30-60 minutes. Parents will also complete surveys in clinic or at home, which will take approximately 30 minutes.
The study will provide a parking voucher on the day of the study. Participants will also receive compensation for their time and effort.

Recruiting:  Parents of youth under 8 years old who have had type 1 diabetes for at least 6 months

Contact: Alina Cheema at 617-309-4477 or alina.cheema@joslin.harvard.edu

Page last updated: February 13, 2016