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Research Volunteer Opportunities in Pediatric Clinical Research

TrialNet Natural History Study for the Prevention of Type 1 Diabetes

Description:  This study aims to identify youth and adults at risk for type 1 diabetes by testing for diabetes-related antibodies in relatives of people with type 1 diabetes.  It involves a single blood test.  People who test positive will be eligible for further testing and may be eligible to participate in prevention trials.

Recruitment: Parents, children, & siblings, ages 1-45, and cousins, grandchildren, nieces, & nephews, ages 1-20, of people with type 1 diabetes.

Contact: If you are interested in learning more about the study, please visit our website http://www.joslintrialnet.org or contact us at TrialNet@joslin.harvard.edu or 1-888-813-8609.  

(CHS #03-33) 

TrialNet Natural History Study for the Prevention of Type 1 Diabetes
Description:  This study aims to identify youth and adults at risk for type 1 diabetes by testing for diabetes-related antibodies in relatives of people with type 1 diabetes.  It involves a single blood test.  People who test positive will be eligible for further testing and may be eligible to participate in prevention trials.
Recruitment: Parents, children, & siblings, ages 1-45, and cousins, grandchildren, nieces, & nephews, ages 1-20, of people with type 1 diabetes.
Contact: If you are interested in learning more about the study,
(CHS #03-33) 

T1D Exchange

Description: The Type 1 Diabetes (T1D) Exchange is a nationwide registry collecting information about children and adults with type 1 diabetes. The purpose of the registry is to gather information about people with type 1 diabetes to better understand the natural course of type 1 diabetes and the effectiveness of current treatments. Participation in the registry involves completion of a questionnaire about medical and family history including diabetes diagnosis and treatment and laboratory test results. Annual updates of information are also part of the registry.

Recruiting: At the Joslin, children <7 years of age being followed in the Pediatric, Adolescent, and Young Adult Section may be eligible to participate in this registry.

Contact: Alina Cheema at (617) 309-4477 or amailto:Alina.cheema@joslin.harvard.edu 

Patient and Parent Perceptions of Hypertension and Hyperlipidemia Management and Diabetes Complications

Description: This study will explore parent and youth attitudes toward cardiovascular risk factors such as high cholesterol or blood pressure and diabetes complications. Participation involves one interview or focus group for approximately 60-90 minutes. Interviews can be on the same day as routine diabetes visits and will add an extra 60 minutes to the clinic day.
The study will provide a parking voucher on the day of the interview or focus group. Participating teens and parents will also receive compensation for their time and effort.
 
Recruiting: Families of teens ages 13-19 who have had type 1 diabetes for 12 months or more.

Contact: Amanda Whitehouse at 617-309-4523 or amanda.whitehouse@joslin.harvard.edu

(CHS #2015-30) 

 

Page last updated: September 30, 2016